We were first told that our baby had a problem with her heart at our 20-week scan…
We were offered 3 options: to have the baby terminated, go for the surgery and hope for the best, or have the baby & take it home to die. We decided to give our baby the best chance of life and go for the surgery, leaving it in the hands of god…
Our precious daughter ‘Charlie Grace’ was born on Saturday, 4th August 2001 at 10.30am by normal delivery; she was a lovely colour, very noisy and had all the appearance of a `healthy` baby. Within 2 hours she was taken to the Birmingham Children’s Hospital where we were to all start on this new journey that was to map out our future way of life.
On July 24th 1.00pm Charlie went to theatre for her 9th Operation…
There are no more surgical options for Charlie, because her heart will only be functioning on one ventricle her heart will eventually tire so much that it will not function any more, the only option will be a heart transplant and we have all ready been told that the majority of children die before the hearts become available.
They tell us at the hospital to enjoy her and enjoy everyday, but how do you spend each day knowing it may be her last.
Charlie is one of up to 600 children every year, diagnosed with only half a functioning heart, sadly, some of the children do not survive the surgery offered.
სულ ცხრა წლისაა არადა.
გუგლში გადავაწყდი და არ შემეძლო არ დამედო : ((